Reply to this meme by yelling "words!" and I will give you five words that remind me of you. Then you will make an entry explaining what those words mean to you.
These words came from
calli_thaala with the following explanation: "(and no, I'm not saying I think you're prejudiced. You kind of half mention it, half skirt around it a fair amount when talking about disability, so I'm curious what you'll say if I give you both. *L*)"
So, here goes:
Writing: Writing is, and always has been, an integral part of who I am as a person. I started writing poetry and fiction when I was in elementary school and haven't really stopped since then. And writing by hand, in particular, is very meaningful for me. The best way for me to learn something is to write it. I love the way the pen feels on the paper as the ink stains it to create letters and words. I don't write fiction by hand anymore, but I still write poetry and physical journal entries by hand. I'm currently writing a fantasy/sci-fi story called "Unnatural Wizardry" that has been a lot of fun for me. Usually I plan things out for narratives (I don't outline, but I do write down main chapter events ahead of time) and this narrative is kind of unraveling out of me. I find myself wanting to write to see what will happen. And that's really fun.
Music: I have kind of an unusual relationship to music. When I was a music assistant for Mr. Kalkavage at St. John's, he used me as a visual means to get students to learn when they were hearing the tritone, because I'd noticeably tense up in my seat. I don't love music in the way that some of my friends do, but I do love listening to it. For years, I tried to learn an instrument, but have pretty much given up on that now. I can also sing fairly well (I'm good to have in a chorus as the person who can stay on-key and on-beat, but not good as a soloist), but am currently out of practice.
Disability: I used a wheelchair in public for the first time today. I went to get my H1N1 shot, saw that there was a long enough line that I knew I wouldn't be able to stand through it, and actually asked for assistance. This is a huge step for me. I asked for a chair or a stool, but I was given a wheelchair. And I used it. With only minimal feelings of embarrassment. Though being disabled is such an undeniable part of who I am (how could it not be since I was 7 months old when the JRA started?), I still struggle sometimes to not feel embarrassed about it or guilty for things I can't do. It is part of who I am, and I am grateful for it in many ways. I know I would be a very different person without my disability. It's a great life teacher, especially to learn patience, acceptance, and what's really important.
Prejudice: I have this assumption about people that I believe is true. I believe that most people, able-bodied or not, deep down subconsciously believe this: "If I do everything right, nothing bad will happen to me." We believe this because we want to feel in control of our futures, bodies, etc. The converse also usually is hidden deep down as well: "That if I do something wrong, I'll be punished for it." Specifically: "That if someone is suffering in some way, they must have done something wrong." And as related to disabled people, since
calli_thaala asked: "That if someone is disabled, they did something wrong to deserve it." Like I said, this stems from a desire to feel in control. And I can understand this, especially because there's part of me that sometimes wants to believe this. (My first thought when I'm flaring is usually "What did I do?" And sometimes I did do something, but a lot of the times, I didn't.) But that doesn't mean that this line of thinking isn't fundamentally wrong. There are disabled people who've done everything right and able-bodied people who abuse their bodies. There are people disabled from birth or infancy, before they're have a chance to do anything "wrong". (And I don't buy the idea of karma here, that these people did something bad in their last lives to "deserve" this.) This line of thinking leads people to ideas of entitlement: for example: "I am entitled to health insurance because I work. The disabled don't deserve health insurance because they don't work." Etc.
Books: I love books. When I was a kid, most physical activities were off-limits to me. So, I read. I read a lot. I used books mainly as a means of distraction and entertainment. That's still partially true today, though I also use books as a means of learning and spiritual growth now. Kind of beyond the scope of this meme, but I've also recently been reorganizing our bookcases. When we moved in, the books were kind of just thrown on shelves in loose categories, without any consideration of which categories were likely to grow and which not. I did a small reorganizing a few years ago, when I created the poetry section and moved my religious books. Recently, I've moved all the sci-fi and fantasy to one bookcase, alphabetized it, consolidated the Reference section, and created a "videogame book" section in Rob's office. I still have work left to do on the troublesome short-shelf bookcase in the blueroom and the bookcase in Rob's office, but it feels really good to at least have the sci-fi and fantasy bookcase finally DONE.